Did I have Lupus as a child?

During the Lupus Star Foundation (Lupus Star Website) peer support group meeting, I mentioned that I might have had lupus long before I was diagnosed.  Throughout my childhood I had several issues that were just kind of brushed aside and not paid much attention to.  For example, as a child I used to have chest pains quite often. The doctors always said it was just a pulled muscle, because of my sports and dance and such. Ummm, maybe it was pleurisy people. Also, I was very active, but when I ran it was quite painful for my ankles and feet.  I just thought I was slow and out of shape.  


When I got a bit older, like high school and my first year of college, I would sometimes have to stop dancing because of exhaustion.  I mean I just could not finish performances sometimes.  I would faint or come really close to it.  This even got me kicked off of the marching band pommerette team.  I would run out of practice because I felt so bad and I couldn't keep up.  I thought I just sucked.  Did I have lupus back then?  I probably did, but the doctors did not catch it.  They always put the symptoms off as something else.  


As an adult something finally brought the disease all the way out. Yeah thanks!! Now that I know all the symptoms and different ways to diagnose lupus, I think that I definitely had the lupus all along.  Lying dormant within this little girl, that had no idea what lupus was. 


It is important to take any change in your health seriously.  It may seem like nothing, but it could be very serious.  You have to take control and understand what is going on with your body. If your chest is hurting, it means that something is wrong.  You need to find out what it is.  It is not normal for you to have pain for months at a time.  Get it checked, and make the doctors figure it out.  Don't just believe what they tell you!!  They are "practicing", they do not know everything.  As my fellow lupus survivor told us "you have to be your own advocate"; he is absolutely right.  Get tested and checked out when your feeling "funny", it could save your life. :0)


With Love,

QUICK FACT 17

Since many symptoms of lupus mimic those of other illnesses, lupus often can take three to five years to diagnose. Symptoms of lupus can come and go over time, which makes a definite diagnosis more difficult.

Lupus, The Great Imitator

Did you know that Lupus is sometimes referred to as the Great Imitator? Lupus symptoms are very similar to those of several other common illnesses.  The most common symptoms of Lupus are fatigue, headaches, anemia,  joint pain, sun sensitivity, discoloration of fingertips in cold, fever, swelling, chest pain, butterfly rash, hair loss, blood clotting, and tiredness.  Quite the list in my opinion, but lets keep in mind that those are only the most common. 


Many of these symptoms can occur in other conditions and illnesses, such as arthritis, Lyme disease, diabetes, chronic fatigue syndrome, pneumonia, alopecia, hemophilia and more.  This is why Lupus is called the Great Imitator, its symptoms are like the symptoms of many other conditions and illnesses.
 Full Article Here


I believe that this is also a reason that it is so difficult to diagnose Lupus.  When diagnosing Lupus doctors have to analyze multiple physical symptoms and test results.  The fact that every Lupus patient is unique (different combinations and severity of symptoms) increases the difficulty of diagnosing and treating the illness.  Lupus seems to imitate many illnesses.  Oh lucky me!! I get a taste of it all. I have even managed to develop the imitator (Lupus) and the imitated (arthritis).  Many of us have at least one other illness to accompany Lupus throughout our life.  All we can do is learn to cope and live life to the fullest.  Education is key!!  You should know what is going on with your body.  Take care and spread awareness!! 


With Love ღ
Simmi

QUICK FACT 9

✔There is no single laboratory test that can determine whether a person does or does not have lupus.  Diagnosing lupus involves analyzing the results of several lab tests that are used to monitor the immune system, along with a review of the person’s entire medical history. (LFA)

FLASHBACK #1

When I was diagnosed with Lupus and Rheumatoid Arthritis back in September 2005, I guess I didn't realize what a great impact it would have on my daily life.  I did't have alot pain at that time (just in my hands and wrists), but my Rheumatoid factor was like 260 (R factor in normal adults my age is <19).   Initially, the news didn't sink in, I'm like okay I have Lupus what next.  My mother was with me, and I don't think she took it as well as I did.  After a while, my feeling towards it changed.  I went from why me, to I'm too young to have arthritis, to there is nothing I can do about it.  I didn't even do any research, it was like  my friends and family cared more than me. Now I see it as an experience that changed my outlook on life, and I am ready to take it head on. ღ