Shining Bright for Lupus!

     Advocating for Lupus has been a pleasure for me.  Talking to lupus survivors, giving advice, lifting spirits and educating the public feels right to me.  I believe that having lupus has pushed me to do what I am supposed to do .  Though it is a terrible illness, I can now see it as a blessing.  It has brought me to find my passion.  I have always wanted to help, volunteer and have a career that assists the community, but I didn't know exactly know what I wanted to do.  Whether it was help children, work for a nonprofit, join the peace corps, etc.  Now I see that I am supposed to be helping my fellow lupies.  I noticed that when it comes to lupus awareness and helping lupus survivors I will push myself to do what needs to be done.
     When my boyfriend mentioned starting a lupus blog, I ran with it. Even though I am not the best writer and it is not my favorite thing to do; I love writing about lupus and sharing information with those whom are interested.  I just felt like I needed to do more.  He saw how fulfilled I was doing the blog and networking with people, so he mentioned starting a nonprofit.  I had thought about it, but i thought it was above my abilities at this point.  But when he said it, I ran with it.  So I have started Lupus Star Foundation.  We will provide support and services for lupus patients and their families, and eventually I would like to have a wellness center.  The wellness center is our future goal.  But for now, I would like to do whatever I can to assist my lupus butterflies.  
     We have already made it through our first event.  It was very successful!  I had a great time and didn't mind sitting in the heat for 9 hours a day.  I must really love you guys lol.  We had a booth at a fair here in Ypsilanti, MI.  We educated the passers by, collected donations, did face painting for donations, and sold handmade jewelry to raise money.  We still have beautiful bracelets and necklaces if your interested.  


     Our focus now is to raise funds in order to start doing events and offering services to lupus patients, as well as spreading awareness.  Some of the services we plan to offer are support groups, wellness days (massages, facials, etc.), emergency financial assistance, seminars, webinars, and many more.  I would like all of you to join the Lupus Star Foundation Website and spread the word.  There are forums there that I would like you all to participate in.  We want our website to become the place where lupus survivors and supporters go to share information, get advice and support, and meet each other.  You are the ones that need to start it off.  I need your support, so help me out guys.  You are my Stars!!  
     If you have any advice or resources that can help me and LSF become more successful please let me know, I would really appreciate it.  And if you know someone that would like to donate to our efforts, it can be done on the left side of the blog through paypal, or by mailing a check or money order (address is on the website).  Thanks guys!! 


UA-communication-research said...


My name is David Keating and I am a student at the University of Arizona. I am working with Dr. Steve Rains, who is an Assistant Professor in the Department of Communication. We are conducting a study about blogging and health and would greatly appreciate it if you would complete our survey. We found your blog by conducting a general search for blogs about health. We would like to know more about your experience blogging.

Our survey takes about 20 minutes to complete. To participate, you must be (a) 18 years of age or older and (b) have made a blog entry in the past 30 days.

If you meet these requirements and would like to participate, please click the link below. The study will be conducted online and the link will take you to the first webpage of the survey.

[Note: You may copy and paste the address directly into your web browser (i.e., Internet Explorer) to access the study.]

If you have any questions or concerns about the study, you may contact Dr. Rains at:

Thanks for your consideration!

Best Regards,

David Keating
David Keating
Department of Communication
University of Arizona

Petula said...

It's great that you feel this passion for sharing and helping. I've learned that it's often the things that plague us the most that help us help and encourage others the most. I guess it's like the test in the testimony, so to speak. Keep up the good work.

TheyCallMeBE said...

Great job Simmi! We are all so appreciative of your hard work

Lupus Star said...

Thank you so much Petula!! You always make me feel so good about what I am trying to do :-D

Thanks BE, I will definitely keep it up!! :0)

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